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Special Needs Bank Account

Regular Guest Blogger and Financial Adviser Allan Cuthbert specialises in financial planning for in the area of special needs and disabilities and sets out in practical terms what families need to consider for sound financial planning. A question I have … Continued

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Rare Disease Day 28th February 2014

Rare Disease Day was launched by EURORDIS and its Council of National Alliances in 2008. Held on the last day of February each year, it seeks to raise awareness for the impact rare diseases have on the lives of patients … Continued

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2014 The Year Ahead

SNPA has always been parent led by an Executive Committee of parents who volunteer their time. Towards the end of last year, we lost our Treasurer Susan Sheehy under the most tragic of circumstances. Sue was an integral part of … Continued